Cohort 6 Covid jab

 Well this was a turn up.

Apparently having neurofibromatosis put me in cohort 6 in the UK vaccination roll out. This meant that I was eligable for my first covid jab two weeks ago. Despite my age bracket not being due just yet when I was offered it I was not going to say no.

So I turned up for my appointment and I was in and out in about 10 minutes.

I hate needles and alway have to look away when I get my anual flu jab. This was painless and so quick I wasn't sure anything had happend until the doctor said 'all done'. Sill it was the Oxford one I had so should get the next one mid to late April.

Did I react badly to it? Not at all. Ok, yes, I had a sore arm for a day or two but this is common with most vaccinations. Other than that I had no reaction to it at all. Now I know we all react differently to vaccinations and other people may have had a different experiance but the sore arm is still better than getting covid.

I never thought there was an advantage to having neurofibromatosis - but it looks like I have found one.

 

  

check up and up date

Well had a check up.

The good news is that nothing that will cause long term issues has developed and scans, eye check etc came back clear. I have my eyes checked more often due as I have an eye sight test each year so this I already knew would be clear.

The less good news is that I have developed a few more neurofibromas on my torso. Well as I keep this covered most of the time it isn't a major problem. I have been fortunate that so far none have developed on my face but I do have one just behind my ear - although keeping my hair a little longer covers this one.

Really quite uneventful to be honest thankfully I have a mild case (so far) of it.

Covid-19 and NF1

So we have heared a lot about underlying conditions and Covid-19 so to keep things brief:

Covid-19 is a SERIOUS condition. We are not talking about something a bit like seasonal flu here. We are possibly talking about something that is on the same page as the 1918-19 Spanish flu pandemic which killed about 50 millon people world wide - more than died in the first world war. That pandemic killed NOT just the elderly or already unwell. It was reported than young fit people who appeared to be fit and well at breakfast were dead by dinner time the same day.

You have been told by governments to say at home so show some common sence and do it.

However, does NF1 increase your risk and make it more dangerous? Not neesseseraly no. From what I have read, unless you are undergoing treatmemt for serious conditions that can develop with NF you are at no greater risk of getting nor developing complications should you catch covid-19.

The best thing is to read the available information on reputable sites, I tend to stick to the NHS site and the dept of health sites.

Neurology update TIA etc

It has been a while since I posted on here. Nothing really has changed so all stable etc.

The neurology department decided a while ago they did not need to keep seeing me as I have had no further issues from the TIA I had nor any issues with my NF.

The only real change has been that I'm an uncle. Now, my brother asked me about my neurofibromatosis and the chances my nephews will have it. Well unless he or my sister-in-law has NF the chances are small as it is carried by a dominant gene. Hence his children can only get it if he or my sister-in-law have NF which neither do so their children are unlikely have it either. Unless it has been caused by a random gene mutation.

Oh well as there us nothing more at this time, I'll sign off. I do have my other blogs on here which I am updating a bit more often.

been a while

Wow it has been a while since I posted on here, not much to report is the main reason.

Still last year I apparently had a transiant ischemic attack (mini stroke) the MRI and all the other tests came back clear but now that is on my medical record my life insurance and other medical insurances etc have gone up - typical isn't it.

No new neurofibromas have appeared and thinking about having the one on the top of my thigh removed although this will be a cosmetic thing and I'm not into having things done just fot the sake of it. Most of the rest are on my back and so I can't see them.

oh well back to work.

been a while

It's been a while since I wrote anything on here mainly as not much has changed. The only real adjustment is that the hospital has changed the appointment I had scheduled with the opthamologist.

Still all is going well otherwise no new neurofibromas etc so just need to wait for the new appointment and then see what the updated field vision tests reveal.

been a while

Haven't written on here in a while mainly as nothing has changed. Still my money saving bug has the better of me so have put the cashback links I know on here:



http://www.internetcashback.co.uk/refer/44869

http://www.greasypalm.co.uk/r/?l=688124