Monday, 16 March 2009

had the results - it's positive.

Yep the results of the biopsy have confirmed that I have neurofibromatosis type 1. Oh well at least I have a name to put to it now even if it has taken 30 years to have it picked up.

Still the stiches are out and was told it was healing well - joy.

However, I now have to have several appointments with genetasists and some eye doctor which has a title I can't remember or even say let alone spell. lol

Oh well will keep this thing updated after a few more apointments and other things just to keep it all written down, it's all good fun - honest.

Sunday, 15 March 2009

Stiches out tomorrow - and the results

Ok so it's results day tomorrow and the stiches come out - yay.

The site of the biopsy is healing ok and it hasn't become infected which is good. Still I'm assuming there is nothing really sinister in the biopsy as if there was I would probably have been called in sooner. Well perhaps I have been but the idiot housemates I have just haven't passed a message onto me. Missed several things due to that, well that's when they bother to answer the phone anyway. 9/10 times if I don't answer it no one else does still my most important calls come over my mobile so I now tend to ignore it myself.

Oh well just need to see what the say tomorrow but it could be the start of alot of appointments.

Wednesday, 4 March 2009

the itch is driving me mad

Ok had the dressing removed well for once it didn't pull all the hair out lol.

Still the itch of it all healing is driving me nuts. I know I shouldn't scratch it but it's aaaaggggghhhhhhhh! can I really stand it for another week and a half? Wish they would hurry it up and get the resuts sorted. Ok I'd still have to have to have the stiches out but it's this waiting around for the resuts I hate hate hare.

Oh well.